Thursday, 2 August 2007
Drugs, drugs, drugs!!
The drugs arrive on Tuesday, I will do my first injection a week Monday and I should get my EEG results when Dr W gets back from his hols. Things are moving on!!
Tuesday, 31 July 2007
Fed up.....
Its been over two weeks since my appointment with my MS Nurse and I haven't heard from the woman about my drugs yet..... I am fed up with waiting for things. I am also waiting for the results of my EEG which was three weeks ago. Will email my MS Nurse tomorrow when I get home from shopping (with Mum) and ask re the drugs and test results.
Other than that all is good! Am using my days off well by doing very little, went to the pub yesterday and walked down to the pet shop today. A little bit of tidying and washing and thats it!
The weekend was relatively busy. Friday evening my parents came round to B's for dinner, B cooked, I did the starters, and we had a nice evening with wine and music! Went very well I think! Saturday afternoon/evening was a BBQ on the communal garden at my place. We were really worried about the weather but in the end we were out there from 15:30 till 20:00 and most people from the block attended at some point!
Sunday I re took my Bronze Medallion for the umpteenth time. I'm very unfit and therefore found the water part of the exam tiring but it didn't make any of my lingering symptoms worse which is great.
Back to work on Friday morning - really looking forward to it, especially the weekend as I am working with a good friend!
Other than that all is good! Am using my days off well by doing very little, went to the pub yesterday and walked down to the pet shop today. A little bit of tidying and washing and thats it!
The weekend was relatively busy. Friday evening my parents came round to B's for dinner, B cooked, I did the starters, and we had a nice evening with wine and music! Went very well I think! Saturday afternoon/evening was a BBQ on the communal garden at my place. We were really worried about the weather but in the end we were out there from 15:30 till 20:00 and most people from the block attended at some point!
Sunday I re took my Bronze Medallion for the umpteenth time. I'm very unfit and therefore found the water part of the exam tiring but it didn't make any of my lingering symptoms worse which is great.
Back to work on Friday morning - really looking forward to it, especially the weekend as I am working with a good friend!
Labels:
Multiple Sclerosis,
Social
Thursday, 26 July 2007
I made it!
I have completed my first block of three shifts on the road! 16:00 - 01:00, even finished late on Tues night, my first overtime since March!! Come to think of it I haven't filled in my time sheet as yet, must do that........
I am feeling pretty good today! I guess following my first shift I must have managed to get dehydrated and so felt pretty bad during the day. I think I do need more sleep than I did before but only an hour or so.
Over the 2nd two shifts we did some 'interesting' jobs. Mainly mad women but an RTA (my usual type of job) and a well known alcoholic who had fallen over! Oh and the staff at TGI Fridays in Reading don't appear to be able to tell you what is in their food. This is an issue when you are allergic to sweet peppers and have been told the dish you have ordered doesn't contain them.......fortunately her reaction usually comes on over 30 mins and we took her over to the hospital before it really got started - let the hospital deal!!
So all in all I am really pleased to be back at work and to have coped with the hours. I will have to work 12 hour shifts but I think I will be fine with them. My (and Bs) sleep won't be so disturbed on the 12 hour shifts as they are either all day or all night rather than me getting in at 2am and B getting up at 7am!
4 1/2 months ago when I came off the road I thought, back problem, couple of months with some physio for example then back out to it. Then things like MS and tumors were mentioned and suddenly its neurological. I still chose to hope that it was an isolated incident, I didn't prepare myself at all for the final diagnosis of MS. I think in someways it was better for me to carry on not worrying about the possibilities and wait for the Neuro to give me the results.
Throughout all of this I have always clung to the FACT that I would get back on the road doing the job I love. I am now there. I know there may be a time when I can't do what I want to do anymore but I will cross that bridge if I come to it. I also know that future relapses may take me off the road again but I am hoping that Rebif (the interferon I will be taking) will limit the number and severity.
I have written an email to thank all of those at the RBH that have been involved with my diagnosis as I have been diagnosed quickly with very little fus and have always been listened to and treated with kindness.
Right, I am hungry - lunch!!
I am feeling pretty good today! I guess following my first shift I must have managed to get dehydrated and so felt pretty bad during the day. I think I do need more sleep than I did before but only an hour or so.
Over the 2nd two shifts we did some 'interesting' jobs. Mainly mad women but an RTA (my usual type of job) and a well known alcoholic who had fallen over! Oh and the staff at TGI Fridays in Reading don't appear to be able to tell you what is in their food. This is an issue when you are allergic to sweet peppers and have been told the dish you have ordered doesn't contain them.......fortunately her reaction usually comes on over 30 mins and we took her over to the hospital before it really got started - let the hospital deal!!
So all in all I am really pleased to be back at work and to have coped with the hours. I will have to work 12 hour shifts but I think I will be fine with them. My (and Bs) sleep won't be so disturbed on the 12 hour shifts as they are either all day or all night rather than me getting in at 2am and B getting up at 7am!
4 1/2 months ago when I came off the road I thought, back problem, couple of months with some physio for example then back out to it. Then things like MS and tumors were mentioned and suddenly its neurological. I still chose to hope that it was an isolated incident, I didn't prepare myself at all for the final diagnosis of MS. I think in someways it was better for me to carry on not worrying about the possibilities and wait for the Neuro to give me the results.
Throughout all of this I have always clung to the FACT that I would get back on the road doing the job I love. I am now there. I know there may be a time when I can't do what I want to do anymore but I will cross that bridge if I come to it. I also know that future relapses may take me off the road again but I am hoping that Rebif (the interferon I will be taking) will limit the number and severity.
I have written an email to thank all of those at the RBH that have been involved with my diagnosis as I have been diagnosed quickly with very little fus and have always been listened to and treated with kindness.
Right, I am hungry - lunch!!
Labels:
Multiple Sclerosis
Tuesday, 24 July 2007
At Work!
I am posting from work!! It is 00:20 and I have been on base since about 21:30. This is a sure sign that I will not be finishing at 01:00 as planned....... This is my first shift back on th road since the beginning of March. It is such a relief to be back and not be suffering! I am feeling a little tired but then it is gone midnight.
I am working as a 3rd man with a crew tonight and the next couple of nights so I can get back to it gently! So far tonight we have seen 2 patients both of which needed our help! I haven't done anything too taxing though. I have attached the 3 lead monitoring and sats probe and have drawn up some flush, the 2nd pt needed boarding from a very unhelpful place and position requiring a 4th pair of hands! Used the ED2000 (a spinal immobilisation extraction tool mainly used in RTAs) to help so we could move him onto the spinal board as nothing else would fit. I have previously used the ED2000 once to immobalise a pelvis and twice at RTAs. Haven't used it for ages and used it my first shift back!!
I have had a good first shift (fingers crossed I'm nearly done) and look forward to getting out there as a crew again - here's to next week!!
I am working as a 3rd man with a crew tonight and the next couple of nights so I can get back to it gently! So far tonight we have seen 2 patients both of which needed our help! I haven't done anything too taxing though. I have attached the 3 lead monitoring and sats probe and have drawn up some flush, the 2nd pt needed boarding from a very unhelpful place and position requiring a 4th pair of hands! Used the ED2000 (a spinal immobilisation extraction tool mainly used in RTAs) to help so we could move him onto the spinal board as nothing else would fit. I have previously used the ED2000 once to immobalise a pelvis and twice at RTAs. Haven't used it for ages and used it my first shift back!!
I have had a good first shift (fingers crossed I'm nearly done) and look forward to getting out there as a crew again - here's to next week!!
Labels:
Work
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