Thursday, 7 April 2011

My poor nose....

I have just updated my 'Symptoms Log', I used to list everything on a regular basis, making sure everything was noted and up to date. It seems less important now, I am not going through the process of getting diagnosed, I seem to be doing ok on Rebif so I'm not after any different drugs (although lets face it tablets instead of injections would be nice.....) and nothing much ever happens :0) I do make notes in my diary so I can keep an eye on changes, mainly so I make sure I contact my MS Nurse and get a UTI check if something goes on for too long. I do then transfer any events on to my list - I think I just like lists!!

I realised the other day that I am still writing down injection sites and time of injection every time I inject - I remember talking to someone I met fairly early on who told me I'd give up with that after a while and I absolutely thought I would but I need a reminder of what side I'm on! B injects my bottom for me and just injects into an area which is not red from a site reaction - mine last over a week so he can tell which side it should be - and I inject my thigh and stomach according to my injection diary. Stomach Monday, thigh Wednesday and bottom Friday! Having said that I am using my bingo wings at the moment (arms) as my thighs seem to be permanently bruised..... My left thigh has been sore for a while, 4 months or so at a guess and I have just noticed my right thigh is also sore, I am hoping giving them a break will help but it is getting closer to short sleeve weather and I get lovely red injection reactions on my arms as well as everywhere else :0( Maybe I should speak to my MS Nurse about it......

So, this round:

Flare due to cold (at a guess…)

Went away for the weekend 25-28 March and ended up extremely tired despite being able to relax and get plenty of sleep.

  • 28/03/11 – right eye pain on movement and slight change in sensation to left hand. Symptoms continued intermittently all week alongside exhaustion.
  • 03/04/11 (mother’s day) – symptoms above continue, twinge in the back of throat. Tiredness lifting.
  • 04/04/11 ongoing – sore throat developed Mon – Wed, right eye pain on movement became constant, mild vision change on walking and left hand change in sensation became more noticeable. Tired but not too tired. Wed night started to feel unwell and Thurs off work feeling unwell and very tired – again….

I love the fact that as my cold started to come out I started to feel less tired and I didn't really feel ill for the first few days of bad throat and strange voice but last night and today I am feeling pretty grotty...... I have been home all day, either on the sofa with my slanket or in bed, missing out on the gorgeous sunshine, and have 'watched' a lot of TV and snoozed. Hopefully B will be home soon with my supplies - Ultrabalm tissues (my poor nose), Lemsip, chocolate and cookies (given the lack of alcohol I have calories to spare!!).

No comments: