Wednesday, 23 September 2009

Relapse update

It's been a while since I posted and I haven't really got much to add today. I thought I had better log in and say hi though!

I am doing well. My left arm numbness seems to have hit a plateau and now seems to be getting better gradually. I don't really notice the improvement on a day to day basis but when I think back to a few weeks ago it seems better.

In terms of my tiredness, well I am tired, not fatigued, just tired but I am no worse than I would expect given that I have had a few late nights over the last few weeks. I have also been hung over the last 2 Sundays - not really sure how that happened, well I know how that happened, but I haven't been hung over 2 weekends in a row for a LONG time!

B and I went out to dinner last weekend, a Greek / Italian Restaurant called Il Gusto and is near the station in Reading. The Restaurant is above a small (ish) pub, The Corn Stores and both are run by the same people. The pub is a Fuller's pub so keeps B, and on occasion me, happy for the evening! The strange thing about the Corn Stores is that it is generally fairly quiet, even on a Saturday evening.

So, anything coming up..... No in a word, boring at the moment!

Oh, forgot, I heard about Rebif's new delivery system yesterday - RebiSmart. It looks interesting, we will see!

Tuesday, 18 August 2009

Normal service resumed

I can feel when I pee and poo!! It only took a week which is great! Obviously the feeling is not back to normal, that would be too much to ask, but I am very grateful to be able to feel my ablutions again!

My left arm has taken up the torch but it's not too bad. I can still type, drive and lift a pint with my left hand and arm so it's just a change in sensation at the moment, and has been so for a couple of days.

I still don't have a yeay or nay on whether I have a UTI. My sample was sent to the hospital and I was promised a call on Monday, I will call them tomorrow....... I am still going for no UTI as I would hope I would know........met enough people with one.

I haven't contacted my MSN yet either, on the basis that I haven't got the UTI result and she will ask if I have one. I will still let her know, just for her file, I am hoping this will go away all on its tod and in double quick time!




Wednesday, 12 August 2009

Arse.....

My arse and various other bits below the waist are now numb. I am therefore not bucking the trent for August relapses, therefore, ****ARSE**** I have been touching wood and everything, not fair.....

I am a little annoyed to say the least. The numbness itself actually isn't that bad, it is worse around the top of my thighs, my bumb and genitals which means that although I am a little more unsteady than before when I stand up and if I change direction / don't pay attention to where I am going, I am ok when wondering around at work.

**ALERT - Don't read on if you would rather not read about peeing and pooing...**

My problem is really when going to the toilet. I know when I need to pee, and I am able to pee, I just can't feel it, I know when I have started and finished as the noise stops! I can't remember when I last felt like I needed a poo though. I have been but can't feel much when I push to poo and can't feel it coming out, which also means I can't tell if it is all gone.....sorry, not want you want to be reading about, but I did warn you!

I am also finding that there is a little leakage of both, nothing I can't cope with, but all the same, I'd rather not have leakage...!

On the basis of these slight hurdles I have decided taking a tablet which makes my poo softer and fatty is a bad plan so I have stopped the Alli. I do plan to keep up with the healthy eating though. I have been a bit naughty the last few days as I am feeling a bit sorry for myself, but will snap myself out of it soon - I haven't got much to complain about!

On a different tack, some friends of ours recently had their first baby - a girl. Now I may have mentioned I am not a fan of children, friends, family, ones I don't know..... it seems at the moment there is going to be no way of avoiding them! A few of B's friends are still waiting to pop, a few of mine are also waiting to pop, ex colleagues as well. Now I am really pleased for all of them, and very pleased that so far no one has had any problems, but really, was there something in the water 9 months ago!!??!

Saturday, 1 August 2009

Rain, rain, rain....

Well, it seems to be raining, this is nothing new however, it seems to have been raining most days for some time now, so much for the summer time! Still we had a couple of weeks of sunshine......

I have to say I have very little to report. Weight, well I haven't lost any recently but I survived 4 curries and a chinese with no weight gain so I think my general day to day eating is going well. I have also had no extra side effects from the Alli, so as far as I am concerned things are going well. Just need to get my head down now and get some more off.

I have been on Propanolol for a couple of weeks now. I had a migraine last weekend but only the one. I started taking the higher dose this morning. I am guessing I will get a reoccurence of the symptoms I had at the beginning - exercise intolerance and a lowered heart rate (well the one causes the other). I had to go to the GP to have a check up before going on to the higher dose and she was really nice. However, as seems to be the way with me and GPs she is leaving at the end of August. Never see a GP more than once before they leave - usually locums though.

Oh, we bought a Nintendo Wii today! Got a Wii fit as well so I should hopefully be doing more exercise..!!

Another oh, we bought our corner cabinet and a new dining room table last week. We need a new cabinet for the living room and we bought a display cabinet for our new glasses - thanks to everyone for our wedding present vouchers!

Obsolutely nothing on the MS front - just the way I like it. I am getting a little nervous now, mid August in 2008 and 2007 but I am hoping to buck the trend again this year! Touching wood on a regular basis however.....!